Memorial Day!

To all the men and women, fathers, brothers, mothers and sisters, grandparents and friends who have served in the military, who have given the ultimate sacrifice so we may be safe and our values be upheld, we thank you today and everyday.

We hope you get to spend the day with loved ones and remember those who may no longer be here.  We are getting together with family today and I cannot wait to spend time with them.

Things have been very busy here for the past few weeks.  Frisbee has ended for the boys.  Last weekend we were in Vermont for a tournament were they team came in 3rd over all.  This was a great accomplishment for a team so young.  Saturday was states and although we didn't make it to the finals I am still very proud of the whole PVPA Frisbee team and the wonderful season they had this year.

Jordan is doing well.  Her platelets are still over 150K and we are taking one week at a time.  As long as her platelets stay up she will continue to get the Nplate.  I am sure at some point we will take about when she can try to come off that medication although for now we are just happy her platelets are at normal levels.

Soccer will be ending soon and summer will upon us before we know it.  I am looking forward to having a wonderful summer with many new adventures.

Have a fabulous day!

The Sun Chronicle

last week Jordan and I went to Attleboro to meet with the other members of the Rare Disease United Foundation and the Sun Chronicle was there to interview us.

Check out the article at The Sun Chronicle.

It is a great artcile and is helping us spread awareness about who we are.