Saturday, August 28, 2010

Rehab

Jordan is at a point were she is ready for Rehab. We thought that everything was all set and now we are finding out there might be a problem with Insurance.

One thing I will never understand. She has been on the waiting list at the Rehab for almost two weeks and Friday at 4:30 they decide to tell us there is a problem with our Insurance. Really at 4:30, like they could not have told us at any point over the past 2 weeks. She is suppose to be going there Monday, Monday I tell you.

Now I want the best for her and if we have to pay for it out of our pockets then I will. I would never deny her any care she needs to matter the cost. The thing is I thought this is why we pay for health insurance. So when something happens, we are covered.

The problem is the Rehab is out of our coverage area.

Why is that you ask? Because there are no Rehabs in our area. Since there are none in our area you would think the insurance company would have to help pay for it.

I am not totally sure that they aren't going to help. Although now we are going to be in the hospital for even more days then needed. You would think that they would want to get her to Rehab and getting better instead of paying for her to be in a hospital. I know it sounds crazy and at this point I just want to get her where she needs to be to get the help she needs to get better.

I have started the ball rolling this weekend and contacted every person I can think of that might be able to help. Monday morning the insurance company will not know what hit them.

I do not believe in yelling and screaming because I feel it gets us nowhere. I am looking forward to getting this taken care of so that we can get Jordan on the road to recovery.

Thursday, August 26, 2010

Sometimes it is just so HARD

Sometimes being a parent is the hardest thing in the world. I know girls go through phases were they either love you or hate you. I was this way with my mom. I never got along with her until I got older and even now I don't always see eye 2 eye with her.

With that said I guess I never realized how hard it can be. When you child is in pain you want to comfort and care for them. You want to make it all better and it seems I am the last person my daughter wants right now.

I know this is a phase and it should not bother me to much, although at times I just can't handle it. I want to help her and make her understand that everything I have done over the past 3 weeks is for her. To make her better and get her ready to come home.

At this point I can no longer do that. She needs help that is beyond me and the best thing I can do for her is get that help.

Years from now when she looks back on this she is going to remember how much she HATED me. Hopefully she will also realize how much I love her and just want the best for her.

Monday, August 23, 2010

I Luv U

Today Jordan had a great day with Jeff and I. She was playing with him all afternoon, laughing and having fun. It was great to see her acting more like herself than she has in the past 3 weeks.

She is doing so many things these days it is crazy to think that 2 weeks ago she was in a coma and we were not sure if she was going to make it. Since then she has started to talk and has learned how to move her bed up and down.

I was amazed last night when Jeff said she was playing a game on the Ipod. I was like what she is playing a game. Is she really play a game and actually making it work. How is that? Are you sure she is playing? Well yeah since she flipped through the pages to find the game she wanted and she started it. No way I was like totally amazed.

Then she said "Which button do I press?" She wanted to know which one was for the light. The first thing her brothers said was, "Wow she really said that many words" It is so funny how she is moving forward by leaps and bounds and we are trying to keep up.

Since all this has happened she has been very angry with me. We have no idea what the last thing she remembers is and we have no idea how much she remembers from her time in ICU. Part of me thinks she is mad because I was the last person she was with when she was safe and she is wondering how I let this happen to her.

Well today she took Jeff's phone and she get to the text message area. Somehow she found my number and she text me "lluv u u"

I was so shocked and impressed and that I started to cry. I can not believe that she is able to text and that she found me or that she was able to text that. It is like her momma for the first time only a million times better. It is amazing to have her tell you something like this. Even if for the rest of the day she is upset I don't care.

There is something to be said about being a parent and days like today only make it better. I think we all have times when we are proud of our kids and right now I could not be prouder of her.

I know it is a small step on a long road, it is a step non the less.

Wednesday, August 18, 2010

Crazy 2 weeks

The past 2 weeks of our lives have been crazy.

On August 3, 2010 my daughter had a seizure in the back of my car. Thank God we were right by the police station and there was an officer leaving at exactly the time I pulled up. His quick response in getting us help got my daughter to the hospital within 20 minutes of the start so her seizure. When we arrived at the hospital the ER staff was ready and waiting for us. They did an excellent job of taking care of our little girl while keeping us informed of what was going on.

After about 4 hours we were finally able to see her. She was in the PICU hooked up to lots of different machines and she did not look like herself. They informed us that they were trying to get her brain to stop seizing and they were having trouble doing that. I stayed with her all night and watch the EEG machine monitor her brain. Finally at about 3:30 Wednesday morning the seizures stopped. When the doctors came in Wednesday they informed us that they were not sure what was going to happen. They could not tell us why she has the seizure or what the out come was going to be. She was in critical state and they felt that if she waked up there would be some issues with her, and there was a possibility that she might not wake up. I can tell you no one should have to go through this. You can only imagine what it was like to hear that your baby might not make it. Over the next 11 days she was in a medically induced coma. She was on more medication then you can think of and her body processed some of it very fast.

On Wednesday August 11, 2010 they finally weened her off of the medications that were keeping her in a coma. I know some people where hoping she would just wake up and start talking, although I never thought that would be the case. It has now been a week and we are seeing little progress.

She listens to simple commands like sticking out her tongue or rolling over. She knows my voice and calms down very fast when I talk to her.

The road ahead of us is going to be a long one and I can not wait for the day when she is able to say Momma again!